She was discharged from St. Mary's on Saturday. She decided that she is more comfortable and easier to care for at mom and dad's house. Saturday afternoon wasn't too bad, but Sunday was a steady decline. She was very ill and nauseous and vomiting by last night. She is fatigued from the chemo and that is made worse by not consuming enough calories to maintain anything other than basic body functions. Her body is trying to use what little she takes in to do the most it can, and right now that doesn't mean much.
Home health care is supposed to start today. I don't know what that is going to consist of or if this will be a long term plan. I do know that Alicia's care is difficult. Keeping up with meds, feeds, cleanings and then starting over again. Alicia also needs a lot of sleep to conserve energy and for pain management so you have to juggle that too. I don't say that to make anyone think that she is a burden, because she isn't, but for a lot of our friends, if you have never been in this situation you may not realize that it takes a lot. And if someone can learn from this, or be more prepared to face their own tough situation with a loved one someday, that would be a bonus to this blog.
So back to where we are today. Alicia isn't doing very well and it isn't something specific, she just isn't well.
Thank you all for the continued prayers!
~Sarah